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  • Anastasiya P.
  • Mihail S.

OCTOBER-NOVEMBER 2022

Dear friends!

Thank you for your help and your persistent support!
We continue to raise funds for those we wrote about in the last letter.
In October and November, your help is also expected by:

Mark Vasiltsov, 2 y. o., Gomel, Belarus. Diagnosis: bilateral retinoblastoma (cancer of both eyes)
A year ago, the parents of little Mark have noticed a glow in the boy’s eye. After the examinations, the doctors have diagnosed him with stage 3-4 cancer of both eyes.
The baby was urgently hospitalized and they started his treatment at the Belarusian Cancer Center. Mark has received all possible treatment available in Belarus. However, for remission to occur, it is necessary to continue laser treatment. This laser is available in Switzerland, in a clinic specializing in the treatment of retinoblastomas. The boy is already undergoing treatment at the clinic, but Mark’s family and friends have exhausted their funds to pay the bills. Part of the amount to continue the treatment was covered by a German charity fund. The parents still need to raise about EUR 40,000.
 
Danil Sirota, 18 y. o., Kyiv, Ukraine, aftereffect of osteosarcoma.
We have been helping Danil and his family for several years.
On February 21, 2022, Danil was expected at the Munich clinic for the final stage of operation to save and lengthen a leg destroyed by cancer and bad treatment in Ukraine. But the operation was postponed because of the outstanding debt for the previous stages of the treatment. And then the war has erupted, and we helped the family get to a safe place out of the shelling.
In addition to Danil, the family has another disabled child, his younger sister Mira, 10 y. o., with an anomaly in the development of the urinary system. The girl has also undergone many operations, including the kidney removal. Over the past eight years, the parents have been trying their best to save the life and health of their children, spending most of their time in hospitals, sometimes even being there at the same time: the mother with their daughter, the father with their son.

Danil’s story from his mother:
“Danil was born as a healthy child, but at the age of 9 he was diagnosed with osteosarcoma (cancer) of the left femur with metastases to the lungs. The treatment took place in Kyiv, at the National Cancer Institute. The road to recovery was long and difficult. During a year and a half, Danil has undergone more than 20 courses of chemotherapy, 4 of them high-dose, an operation to remove the tumor – together with the bone, two operations to remove the metastases from the lungs, one operation to lengthen the prosthesis. He has survived a relapse. With the first Stryker endoprosthesis installed to replace the removed bone, Danil has suffered for 2 years. The prosthesis was originally intended for an adult rather than a child. The knee did not straighten, it constantly swelled, the fluid accumulated in it and had to be pumped out at the Cancer Institute. During this time, the healthy leg grew by 7 cm. Danil has developed pains not only in the leg, but also in his curved spine.
In June 2017 at the Sitenko Institute in Kharkov, Danila was fitted with a new German growing prosthesis Mutars XPAND, which was supposed to equalize the difference in leg length. But a part of the bone crumbled during the installation of the prosthesis. The leg thus remained almost the same length as before the operation. Soon after installation, a huge fistula caused by staphylococcus bacteria has formed at the suture site on the knee. It literally began to corrode the son’s leg. The hole was so huge that the prosthesis itself could be seen through it. On the top it, six months after the operation, at the control examination, the X-ray revealed a malfunction in the block of the growing module – the prosthesis broke.”

In 2018, after 9 months of unsuccessful treatment of the staph infection in Ukraine, where Danil was simply proposed the amputation of a prosthetic leg, the family turned to Professor R. Baumgart. The treatment at the Center for Corrective Limb Surgery in Munich has included three stages and costed EUR 250,000. With the help of a German charity fund Herz für Kinder, and the Ukrainian charity funds Solnce v ladoshkah and Schastily rebenok, they managed to raise the bulk of the amount.
Over the next two years, Danil has undergone 5 operations, defeated the most difficult infection, Danil’s bones lengthened and grew to the state enabling the prosthetics. Now his health is normal, there are no side effects from the operation and procedures. Danil’s body is ready for installing a new prosthesis, which will allow him to freely move around without crutches. But the operation has been postponed indefinitely, because the debt to the clinic for the previous treatment has not been repaid. As of today, it amounts to EUR 12,076.42.

 
On October 14-18, the first psychological conference for psychologists and volunteers working with refugees and families with sick children has been successfully held in Montenegro. Details can be found at the site dobromore.eu

The important results were: the methodological recommendations for help organizations and state structures that accept refugees have been developed, the main provisions for supporting psychologists and volunteers have been drawn. For the refugees: we made a basic manual to minimize the aftereffect of traumatic situations and facilitate psychological adaptation to new conditions. The next conference is scheduled for the end of February 2023.

 
HURRY TO DO GOOD!
I wish health to you all! Take care of yourself and your loved ones!
I embrace you heartily,
Yours Alina Titova

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