Age: 6 y. o.
Residence: Russia, Moscow
Diagnosis: SMA Type 1
Needs: treatment in Germany
Funds to raise: EUR 2700

Masha was born a healthy child, but after four months, her parents noticed that their daughter was falling behind in physical development. They turned to doctors, but the neurologist did not find anything significant and recommended massages. After a few massage sessions, Masha stopped crawling. After genetic testing, the diagnosis of spinal muscular atrophy (SMA) Type 1 was confirmed. The parents are doing everything possible to save their daughter. However, the treatment cannot be done in Russia. Now, the girl needs to visit a specialist at the Charité Clinic in Berlin, Germany. The cost is 2,700 euros.

Age: 15 y. o.
Residence: Russia, Krasnodar Region
Diagnosis: Encephalopathy, epilepsy, scoliosis grade 4
Needs: rehabilitation in Germany
Funds to raise: EUR 6600

Evangelina was born with complications and was in intensive care from the first days of her life, where she was diagnosed with encephalopathy. Despite doctors’ observations and treatment, her condition worsened, and seizures started. Over time, the girl has developed kyphosis. During the time of pandemic, it evolved into grade 4 scoliosis. The surgery that was planned in Germany had to be performed in Russia because of her poor health. Despite all difficulties, Evangelina maintains the ability to walk with support and is very happy when she manages to do so. She has undergone six surgeries, and now she urgently needs rehabilitation. Evangelina is ready to receive treatment at the TeraReha Rehabilitation Center in Ratingen. The cost for three weeks of rehabilitation is 6,600 euros.

Age: 10 y. o.
Residence: Ukraine, Kharkiv Region
Diagnosis: CLOVES Syndrome
Needs: Rapamune medication
Funds to raise: EUR 300

We have helped Sasha and her family multiple times. Alexandra has a rare genetic condition – CLOVES syndrome. She needs to take Rapamune medication on a permanent basis. This time, we need to purchase this for three months. The cost for this medication is 300 euros.

Age: 5 y. o.
Residence: Nizhny Novgorod Region, Russia
Diagnosis: Cerebral palsy
Needs: surgery in Georgia
Funds to raise: EUR 14,700

Nikita was born at 26 weeks weighing just 850 grams. He spent a month in intensive care and then in the pathology department.
At 10 months, he was diagnosed with cerebral palsy. Since then, he has been undergoing regular rehabilitation. Nikita’s intellect is fully preserved: he speaks, learns poems and songs, and knows the alphabet and numbers.
Due to a growth spurt, he developed spasticity that caused hip dislocations, necessitating surgery. Nikita is in severe pain, and the operation will help reduce spasticity and realign his joints. The operation at a clinic in Georgia costs €14,700.