We have helped with tickets and the visit to the hospital: april 2025
Age: 13 y. o.
Residence: Moscow, Russia
Diagnosis: Multiple arthrogryposis
Needs: tickets to go home
Funds to raise: EUR 300
Until the age of 5, Misha lived in an orphanage. He has a congenital musculoskeletal condition and, before being adopted, he couldn’t walk or move his arms. Over his 13 years, Misha has undergone many surgeries to be able to live a full life. Unfortunately, he has recently experienced a complication in his foot, that was operated in Germany several years ago. He has now been unable to walk for almost a year.
To determine the cause of the complication, Misha was brought to a German clinic for an examination. A medical board has decided that he would need another surgery. But at the moment, Misha and his mother just need to return home. They need help to purchase the tickets – €300
Helped to buy the medecine, april 2025
Age: 10 y. o.
Residence: Ukraine, Kharkiv Region
Diagnosis: CLOVES Syndrome
Needs: Rapamune medication
Funds to raise: EUR 300
We have helped Sasha and her family multiple times. Alexandra has a rare genetic condition – CLOVES syndrome. She needs to take Rapamune medication on a permanent basis. This time, we need to purchase this for three months. The cost for this medication is 300 euros.
We have helped to pay for the treatment. December 2024
Age: 5 y. o.
Residence: Gomel, Belarus
Diagnosis: cerebral palsy, spastic tetraparesis, grade 4 disability, delayed speech and mental development, limb contractures
Needs: treatment in Switzerland
Funds to raise: EUR 12,200
Ksenia is the first and dearly loved child in her family. During birth, she suffered a severe injury, and since then, her family has been fighting the consequences and her challenging diagnosis. She has undergone multiple rehabilitation courses in Belarus, Russia, and Ukraine, each bringing positive results. A significant milestone in her development could be a stem cell transplant, which has shown promising results. Ksenia is currently in a three-month medication preparation period, ending in November 2024. The family requests help for the stem cell transplant at the LIV Hospital in Istanbul, Turkey. The bill amounts to 25,400 euros, and 12,200 euros are still needed.
We have helped to pay for the reabilitation
Age: 3 y. o.
Residence: Mozyr, Belarus
Diagnosis: SMA (spinal muscular atrophy) type 2
Needs:a surgery in USA
Funds to raise: 1,650,500
A year ago, little Elizaveta was diagnosed with SMA. This is a disease when the muscles gradually break down, get atrophied. A child begins to lose the motor skills already acquired, and slowly, one after another, the body functions begin to fail. There is a way to stop this disease: an injection of the drug Zolgensma. It delivers to a body a working copy of the broken gene. This injection has to be done once in a lifetime, but it is necessary to do this until the child reaches the weight of 21 kg. The cost of this injection is huge: EUR 1,650,500.
We have helped to pay for a check-up and treatment (july 2024)
Age: 1 y. о.
Residence: Moscow region, Russia
Diagnosis: retinoblastoma
Needs: to pay for the treatment in Switzerland
Funds to raise: CHF 78,000
During a preventive examination, the girl was found to have a formation that required more thorough inspection. The parents went to an ophthalmology clinic and, unfortunately, have received the confirmation that the formation was a stage 2, group D retinoblastoma. In Russia, Valeria has undergone three courses of chemotherapy and two intravitreal injections into the eye. But the doctors did not give any positive forecasts. The family turned to the Swiss clinic Jules Gonin , where the doctors said they could save both the eye and vision. By December, a part of the treatment was completed. But there is still a long way ahead. The family now needs help to pay the bill of CHF 78,000.
