Ksenia A.

Age: 2 y.o.
Residence: Irkutsk, Russia
Diagnosis: spinal muscular atrophy (SMA), type 1
Required: mwdication
Funds to raise: EUR 40,000


Ksenia cannot walk, cannot sit, does not hold her head. At the moment, she can still move feet and hands to the elbow joint. The feeding proceeds through the nasogastric tube, yet she breathes on her own, although at night she requires an artificial lung ventilation through a mask. The mental abilities are not affected so the girl develops as other children of her age.
Just like all children, she likes to watch cartoons, read books, walk outside, cuddle with her mother and play with her dad. She enjoys every new day and teaches others to value every dayof life.
At the time she was diagnosed, the disease was considered incurable. Therefore, the baby was prescribed palliative care. However, in 2016 a new medication Spinraza (nusinersen) has appeared. The drug is certified in the USA and Europe. Its market price is EUR110,000 for a single injection. The children taking the drug restore their lost mobility skills, yet the treatment should start as early as possible. The certification of the medication in Russia is underway, but the process will take at least a year. Ksenia does not have this time to wait. The child is weakening every day. There are fewer and fewer working muscles.
For the child to survive, it is necessary to make 6 injections of Spinraza within the coming year. The price tag is € 701,420 In the family, the father is the only bread-winner, since the mother must be always with the child. At the moment, EUR 70,000 euros have been collected. For the first injection, EUR 40,000 more is needed.

Zachar Ts.

Age: 11 y.o.
Residence: Kyiv region, Ukraine
Diagnosis: kidney transplantation
Required: special medication
Funds to raise: EUR 500 per month

Practically, Zakhar lives in hospitals since the age of five. With much difficulty, his mother managed to get from the Ministry of Health of Ukraine the necessary amount for a transplantation surgery. The kidney transplantation was successfully performed in Minsk. Now the boy will have a long rehabilitation period and requires the medicine support. To prevent the rejection of the donor kidney, Zakhar needs to take progestin, MMF, valcyte regularly. It cost about EUR 500 per month.
The mother is fighting for her son all alone since the father has left the family and is not interested in Zakhar’s life, nor in the life of his younger brother, who currently lives with his grandmother. We are searching for sponsors who are ready to support Zakhar and his family for the coming six months.

Nicolai M.

The collection is over. Thank you!

Age: 6 y.o.
Residence: Dusseldorf, Germany
Diagnosis: autoimmune encephalitis
Required: special medical equipment
Funds to raise: EUR 8,300

Two years ago, Kolya underwent a bone marrow transplantation to cure a genetic efect of the immune system. The happiness of parents lasted 8 months: finally, the child seemed healthy. Yet then he got sick. The cheerful, active child has lost completely almost all functions: he stopped walking, sitting … Only now little by little Kolya begins to swallow… Parents are trying to restore all what is possible. They need special training equipment. However, their insurance does not cover the equipment, and a big family, where the father is also seriously ill for three years, is not to purchase them i. They require; a Galileo vibrating device, € 3.900, Kreta fixators, € 500, other equipment € 3.900. We will be grateful for your help.

Maria L.

The collection is over. Thank you!

Age: 2,5 y.o.
Residence: Sumy region, Ukraine
Diagnosis: Hydrocephalus, cerebral palsy, epilepsy, Vest syndrome
Required: special medical equipment
Funds to raise: EUR 2,300

The girl was born before term, but in a good health. The trouble came on the 7th day of her life of the child. There was an accident in the intensive care unit, for this she has suffered an intracranial bleeding that resulted in meningitis, hydrocephalus, epilepsy …
The child cannot not empty herself, cannot hold his head, hardly swallows, cannot see, does not speak, practically cannot hear, neither reacts to toys …
It is very important for Maria to find proper anti-epileptic drugs, organize rehabilitation that would help the child to learn the necessary skills, and teach parents how to take care of their daughter. Ukrainian clinics refuse to treat the child.
Already for almost two years the parents have to diagnose and treat the child in commercial clinics, and buy expensive medications abroad, all that at their own expense. In the family where only the father has a job, there is another little child.

Maria is being treated in Germany, and was recently hospitalized in Potsdam clinics with urgency: she cannot breathe on her own. The clinics billed for the additional equipment required in her condition, a suction pump and an inhaler, the cost is € 2300.

Rodion N.

The collection is over. Thank you!

Age: 4 years old
Residence: Lugansk region, Ukraine
Diagnosis: ICP
Required: Rehabilitation in Czechia
Funds to raise: EUR 2537

Beside the cerebral palsy, Rodion has a bunch of associated disorders: spastic tetraparesis, symptomatic epilepsy, damage of visual pathways, myopic astigmatism. During 3 incomplete years of his life Rodion has already gone through a lot: he has had 2 resuscitation, 2 bypass surgeries and almost non-stop rehabilitation. He already has the little victories and has achieved certain results.
As a result of rehabilitation, he made great progress: he got skills, the reflexes were activated, and severe epileptic seizures went away. It is necessary to keep and develop the skills and abilities that have already been acquired, and to open new opportunities in the development of the child.
We raise the funds for the next rehabilitation course in Teplitse, Czechia: € 2357