We have helped to pay for the reabilitation
Age: 3 y. o.
Residence: Mozyr, Belarus
Diagnosis: SMA (spinal muscular atrophy) type 2
Needs:a surgery in USA
Funds to raise: 1,650,500
A year ago, little Elizaveta was diagnosed with SMA. This is a disease when the muscles gradually break down, get atrophied. A child begins to lose the motor skills already acquired, and slowly, one after another, the body functions begin to fail. There is a way to stop this disease: an injection of the drug Zolgensma. It delivers to a body a working copy of the broken gene. This injection has to be done once in a lifetime, but it is necessary to do this until the child reaches the weight of 21 kg. The cost of this injection is huge: EUR 1,650,500.
We have helped to pay for a check-up and treatment (july 2024)
Age: 1 y. о.
Residence: Moscow region, Russia
Diagnosis: retinoblastoma
Needs: to pay for the treatment in Switzerland
Funds to raise: CHF 78,000
During a preventive examination, the girl was found to have a formation that required more thorough inspection. The parents went to an ophthalmology clinic and, unfortunately, have received the confirmation that the formation was a stage 2, group D retinoblastoma. In Russia, Valeria has undergone three courses of chemotherapy and two intravitreal injections into the eye. But the doctors did not give any positive forecasts. The family turned to the Swiss clinic Jules Gonin , where the doctors said they could save both the eye and vision. By December, a part of the treatment was completed. But there is still a long way ahead. The family now needs help to pay the bill of CHF 78,000.
We have helped (june 2024)
Age: 14 y. o.
Residence: Nizhny Novgorod, Russia
Diagnosis: Hodgkin’s lymphoma
Needs: treatment in Turkey
Funds to raise: EUR 60,600
Saba was our care-receiver from 2021 to 2023, when he battled hemophagocytic lymphohistiocytosis (HLH), a rare and severe hematological disease, and epilepsy, the secondary disease to HLH. He has managed to deal with these illnesses. But in January of this year, Saba was diagnosed with cancer.
When Saba was diagnosed with HLH, he was a 4th grade student at the Nizhny Novgorod Orthodox Gymnasium named after Sergius of Radonezh, a co-host of the Conversation with Priest program on the Nizhny Novgorod Orthodox radio Obraz. Since November 2019, he was treated in clinics of Istanbul and spent a total of 11 months in intensive care. Saba has undergone 2 brain shunts, two courses of dialysis to restore his kidneys, 14 courses of plasmapheresis to restore the liver function, drainage of the lungs and abdominal cavity, and the tracheostomy surgery. Saba was intubated twice.
Now he is being treated for Hodgkin’s lymphoma. He has completed 2 courses of chemotherapy. There are still 9 months of treatment ahead. The clinic issued an invoice for the treatment. This is a big additional expense. The family does not have that amount, while it is very important that Saba’s treatment is not interrupted. They require EUR 60,600.
We have helped to pay for the treatment (may 2024)
Age: 1 y. o.
Residence: Minsk region, Belarus
Diagnosis: retinoblastoma (cancer of the right eye)
Needs: treatment in Switzerland
Funds to raise: CHF 49,950
When Maria was only 1.5 months old, the doctors have discovered peripheral dystrophy of both eyes cauased by a cytomegalovirus infection, as well as retinoblastoma in the right eye. The girl underwent a course of chemotherapy. She spent much time on intravenous therapy. The family turned to the Swiss clinic Jules Gonin, that has specialized equipment not available in Belarus and a positive experience with treating retinoblastoma in young children. At the moment, Maria has already undergone a part of the treatment: several injections of the drug Melfolan into the eye , thermo- cryo-, and two chemotherapy courses. The treatment must be continued, and the family requires financial assistance.
The bill for the continued treatment comes to CHF 49,950.
We have helped Anna to buy the plane tickets
Age: 10 y. o.
Residence: Novosibirsk, Russia
Diagnosis: congenital heart defect
Needs: funds to return home
Funds to raise: EUR 1,500
For 10 years, the girl has been regularly brought to Germany for treatment and consultations. At the end of October, Anya and her mother came for an open heart surgery. The doctors postponed treatment due to the condition of the blood vessels, but performed an important surgical correction on Anya’s cleft soft palate. However, the seam came apart and there was a through hole in the nose. This caused a lot of inconvenience: food and water constantly got into the nose, and inflammation became more frequent due to bacteria. The second operation has been made only in January. The mother and Anna stayed in Germany much longer than planned. They had to extend the visas and spend a lot of money on accommodation and food. Now that the doctors have allowed them to go home, they do not have enough money for the plane tickets.
They need EUR 1,500 for the trip to Novosibirsk.
