BOGDANA K.

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Age: 9 y.o.
Residence: Yekaterinburg, Russia
Diagnosis: congenital malformation of the spinal cord; shunt-dependent hydrocephalus; Arnold- Chiari syndrome, paraparesis, diabetes type 1(insulin-dependent)
Needs: reabilitation in Russia
Funds to raise: EUR 1,000

After her birth Bogdana underwent a series of severe operations on the spinal cord. This has been done despite the disappointing prognosis. However, the defect in the spinal cord has led to a number of complications. She requires a professional rehabilitation at Dobezny Center for Adaptive Physical Culture in Russia. This course will bring Bogdana’s muscles to a good shape. The cost is EUR 1000.

ANASTASIA K.

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Age: 24 y.o.
Residence: Samara, Russia
Diagnosis: Kearns-Sayre Syndrome
Needs: treatment in Germany
Funds to raise: EUR 6,000

Anastasia has a rare and severe disease. Only about 200 people in the world have been diagnosed with this. The syndrome affects many organs, heart included. In 2012, Anastasia was equipped with the first antiarrhythmic device, which turned out to be ineffective. In 2016, the girl got help in Germany: at the Charité clinic in Berlin they install a complex system that synchronizes the work of her heart. Yet the battery was depleted by the end of 2021. There was no way to replace it in Russia.
In January 2022, another successful operation was performed in Berlin Cardiology Center with the participation of specialists in the field of rare diseases of Charite University Hospital. The threat to life has been removed. It remains to complete the adjustment of the cardio-resynchronization system and organize remote monitoring of it. Anastasia also needs a consultation of an endocrinologist and an ophthalmologist, and the treatment by an immunologist-allergist. The overall cost including the plane tickets amounts to about EUR 6000.

YANA K.

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Age: 3 y.o.
Residence: Lviv region, Ukraine
Diagnosis: juvenile rheumatoid arthritis
Needs: a course of a medicine
Funds to raise: EUR 2,500

The girl was treated unsuccessfully at a place of residence for more than a year. After this, the doctors recommended to turn to a German clinic. There, they prescribed Yana the drug called
tofacitinib. A professor in the German clinic has recommended a surgical correction of the hip joints, but a year course of tofacitinib is required first.
The cost of the medicine for 1 year is EUR 2500. This is very big money for the family.

Yan L.

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Age: 10 y.o.
Residence: Saratov region, Russia
Diagnosis: congenital heart defect
Needs: surgery in Germany
Funds to raise: EUR 156,356

Shortly after the birth, Yan was diagnosed with a congenital heart defect. In the first year of life, the boy was fitted with a mechanical heart valve. Now Yan is already 10 years old. The valve does not work well any more, does not keep up with the growth and development of the child. Yan began to have pain attacks, shortness of breath and weakness. The valve has to be replaced. Yan’s life expectancy will depend on the quality of the operation performed. A quality operation can be done by German doctors at the Berlin cardiology center. However, the operation is not affordable for the family: the mother brings up Yan alone, his father has passed away. EUR 156,356 is required.

Sofia S.

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Age: 3 y.o.
Residence: Chelyabinsk region, Russia
Diagnosis: bilateral congenital hip dislocation, joint hypermobility, connective tissue dysplasia
Needs: treatment in Germany
Funds to raise: EUR 600,000

In 3 years of her life, Sofia has endured a lot: gastrointestinal bleeding, resuscitation, several surgeries, 8 months of wearing a splint. In October 2021, Sofia underwent the most complex reconstruction of the hip joints at Helios clinic in Berlin. Now the girl needs a high-quality rehabilitation. Due to concomitant diagnoses, it is not easy for Sofia to get back on her feet. At home, the mother takes full care of the girl. However, this is not enough: an all-around and competent approach of specialists is required. For rehabilitation at Sakura center in Chelyabinsk, EUR 1,500 is needed.