Age: 8 y. o.
Residence: Russia
Diagnosis: Duchenne muscular dystrophy
Needs: medication Elevidys
Funds to raise: EUR 933,000

Vasily has a rare disease. Every day of his life is a struggle. The illness destroys muscle cells, increasing weakness and reducing his ability to move. Gradually he loses motor skills, the ability to walk, eat independently, and later even breathe… There is a medicine, but it is one of the most expensive drugs in the world. Only a single injection of the medication Elevidys is needed to save the child’s life. But it must be administered before he reaches the age of 9. The cost of the medication is about 2.5 million euros. The family has done tremendous work and a part of the amount has already been collected. About 933,000 euros are still needed.