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AUGUST – SEPTEMBER 2026

Dear friends, thank you for your support!
Over the summer months, you helped:
Vasilisa Degtyareva, 9 years old, Russia, cerebral palsy – with the purchase of medication;
Liza Ekimova, 16 years old, Russia, cerebral palsy – with payment for a rehabilitation course;
Mark Vasiltsov, 5 years old, Belarus, eye cancer – with payment for treatment.

Now our help is needed by:


MATVEY MASLIY, 11 years old, Ukraine
Diagnosis: NBIA – neurodegeneration with brain iron accumulation.
When Matvey began experiencing health problems, doctors were not immediately able to make a diagnosis because he has a rare genetic disorder. Examinations revealed a cyst in the back of the cerebellum, iron accumulation, and difficulty walking. Matvey lives in Ukraine. At present, it is very difficult to receive treatment or even find the medication he needs. We have already helped the boy purchase the medication, and it has significantly improved his condition.
Help is needed to purchase Deferiprone 1000 mg. Amount – 1,500 euros.

VLADIMIR PETUKHOV , 12 years old, Ukraine.
Diagnosis: drug-resistant epilepsy.
At the age of 2, after suffering from encephalitis of unknown etiology, Vova began having epileptic seizures. The child has a severe disability. When the war began in Ukraine, the family moved to Germany. The boy is being treated by doctors at Düsseldorf University Hospital. At present, the German doctors have done everything they can to help Vova.
A new method of treating epilepsy, the RNS stimulator, has now been developed in the United States. In Germany, this stimulator is implanted only in adults. In the United States and Canada, it is also used for children. Texas Children’s Hospital has agreed to accept Vladimir for examination and will cover all medical expenses. However, help is needed to pay for the tickets. The flights cost about 4,500 euros.
Volunteer help is also needed in Frankfurt on September 13–15 – with accommodation and interpreting at the embassy. If anyone can help, please write to us.

ANASTASIA ZHULDYBINA , 28 years old, Russia
Diagnosis: cerebral palsy
Nastya was born almost 3 months prematurely and weighed only 950 grams. At the age of one and a half, she was diagnosed with cerebral palsy.
Her intellectual abilities are fully preserved. She is in her third year of college studying Commerce, takes part in wheelchair dancing, and works on her speech in a theatre studio.
Doctors recommend that Nastya undergo treatment every six months, but after reaching adulthood it becomes very difficult to receive assistance, while regular rehabilitation is essential with this diagnosis. Her parents do everything possible to ensure that she can undergo rehabilitation at least once a year, and they also do a great deal themselves at home. But professional help is essential: massage therapists, specialists in therapeutic exercise and physiotherapy, as well as special equipment.
This autumn Nastya is planning to undergo rehabilitation at the Sakura Centre in Chelyabinsk. The amount required is 2,150 euros.

 
HURRY TO DO GOOD!
With warm hugs,
Yours, Alina Titova

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