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Elizaveta T.

We have helped to pay for the reabilitation

Age: 3 y. o.
Residence: Mozyr, Belarus
Diagnosis: SMA (spinal muscular atrophy) type 2
Needs:a surgery in USA
Funds to raise: 1,650,500

A year ago, little Elizaveta was diagnosed with SMA. This is a disease when the muscles gradually break down, get atrophied. A child begins to lose the motor skills already acquired, and slowly, one after another, the body functions begin to fail. There is a way to stop this disease: an injection of the drug Zolgensma. It delivers to a body a working copy of the broken gene. This injection has to be done once in a lifetime, but it is necessary to do this until the child reaches the weight of 21 kg. The cost of this injection is huge: EUR 1,650,500.

Impressum
Datenschutzerklärung
Russisch Orthodoxe Kirchengemeinde Stuttgart
IBAN:DE62600501010002645779, BIC: SOLADEST, Zweck: Kinderhilfe
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orthodiakonia.de@gmail.com