Vasily has a rare disease. Every day of his life is a struggle. The illness destroys muscle cells, increasing weakness and reducing his ability to move. Gradually he loses motor skills, the ability to walk, eat independently, and later even breathe… There is a medicine, but it is one of the most expensive drugs in the world. Only a single injection of the medication Elevidys is needed to save the child’s life. But it must be administered before he reaches the age of 9. The cost of the medication is about 2.5 million euros. The family has done tremendous work and a part of the amount has already been collected. About 933,000 euros are still needed.

We have already helped this family, but with such diagnoses help is needed regularly. Almost since almost birth, Vasilisa has suffered from severe seizures. For a long time, the doctors could not determine the cause of her condition nor find an effective treatment. A German clinic succeeded in selecting an effective therapy, and the daily seizures became less frequent. This positively influenced the girl’s physical and intellectual development. Now Vasilisa urgently needs the vital anti-epileptic medication Sabril. The medicine has a very positive effect on her well-being. Around 300 euros are needed to purchase this medication.